Larry Boyd is an advocate for people with Huntington’s disease. (Courtesy of Larry Boyd) This is Larry Boyd’s story: It all began in the mid-1960s when I entered high school. My mother was…

Erik Barrett runs his first marathon on the highways of Manitoba, Canada, in 2020. (Photos courtesy of Erik Barrett) This is Erik Barrett’s story: I wear many hats, whether it’s being a caring…

From left, Erika and Melissa Boulavsky celebrate on their wedding day. (Photos courtesy of Melissa Boulavsky) This is Melissa and Erika Boulavsky’s story: Both of our stories begin with and continue to be…

From left, family members Fernando Torres, Ana María Torres, and Rafael Torres take a Sunday stroll. (Photos courtesy of Ana María Torres) This is Ana María Torres’ story: My first memories of…

Hannah Remillard, right, with her mom, Terresca “Mama T” Remillard. Hannah became her mother’s caregiver at the age of 14. (Photos courtesy of Hannah Remillard) This is Hannah Remillard’s story: A typical 14…

Emma Wajswasser, center, displays her book alongside her parents, Erin Paterson and Daniel Wajswasser. (Courtesy of Erin Paterson) This is Emma Wajswasser’s story: Ever since I was young, I was aware that my…

Erin Paterson holds copies of her books. (Photo courtesy of Erin Paterson) This is Erin Paterson’s story: I attended a conference for families impacted by Huntington’s disease (HD) — a spectacular event…

Stu Hopper, left, and Carlos Contreas take a photo in Tenerife, one of the Canary Islands, on a cruise stop by the Royal Caribbean’s Explorer of the Seas. (Photos courtesy of Stu Hopper)…

Kerry Agee smiles with her husband, Cody Agee. (Photos courtesy of Kerry Agee) This is Kerry Agee’s story: Hello! It’s a pleasure to meet you. I’m Kerry, 44, wife of a Gen-Xer, mother…