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Throughout May, Huntington’s Disease News is recognizing Huntington’s Disease Awareness Month through a variety of stories representing different perspectives on life with Huntington’s. These stories highlight some of the unique challenges of living with Huntington’s, as well as stories of hope, inspiration, and other topics that help to generate awareness among the Huntington’s community. Follow along with the series here or visit us on Facebook, Instagram, or X, using the hashtag #HDSpotlight.

May 20, 2025 by Bionews Staff

Why sharing our Huntington’s disease stories is crucial

Christy Dearien discovered her father and grandfather had Huntington’s disease after her brother was finally diagnosed. (Photos courtesy of Christy Dearien) This is Christy Dearien’s story: I knew nothing about Huntington’s disease when…

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May 15, 2025 by Bionews Staff

Huntington’s caregiver goes from burnout to reclaiming her identity

Hannah Remillard, right, with her mom, Terresca “Mama T” Remillard. Hannah became her mother’s caregiver at the age of 14. (Photos courtesy of Hannah Remillard) This is Hannah Remillard’s story: A typical 14…

May 13, 2025 by Bionews Staff

My grandpa inspired me to write a children’s book about Huntington’s

Emma Wajswasser, center, displays her book alongside her parents, Erin Paterson and Daniel Wajswasser. (Courtesy of Erin Paterson) This is Emma Wajswasser’s story: Ever since I was young, I was aware that my…

May 8, 2025 by Bionews Staff

Empowering others with Huntington’s through storytelling

Erin Paterson holds copies of her books. (Photo courtesy of Erin Paterson) This is Erin Paterson’s story: I attended a conference for families impacted by Huntington’s disease (HD) — a spectacular event…

May 6, 2025 by Bionews Staff

Travel and Huntington’s disease are parts of our marriage

Stu Hopper, left, and Carlos Contreas take a photo in Tenerife, one of the Canary Islands, on a cruise stop by the Royal Caribbean’s Explorer of the Seas. (Photos courtesy of Stu Hopper)…

May 1, 2025 by Bionews Staff

My family helps me manage the symptoms of Huntington’s

Kerry Agee smiles with her husband, Cody Agee. (Photos courtesy of Kerry Agee) This is Kerry Agee’s story: Hello! It’s a pleasure to meet you. I’m Kerry, 44, wife of a Gen-Xer, mother…

Recent Posts

  • Why sharing our Huntington’s disease stories is crucial
  • Why my wife is so good at explaining Huntington’s disease
  • Huntington’s patients see day-to-day variation in symptoms, function
  • Navigating the high costs that come with Huntington’s disease
  • Huntington’s caregiver goes from burnout to reclaiming her identity
  • My grandpa inspired me to write a children’s book about Huntington’s
  • Enzymes play opposing roles in Huntington’s disease development
  • An ‘aha!’ moment about a father’s neurological symptoms
  • Finding joy and purpose while living with Huntington’s
  • Empowering others with Huntington’s through storytelling


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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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