Throughout May, Huntington’s Disease News is recognizing Huntington’s Disease Awareness Month with a variety of stories that represent different perspectives on life with Huntington’s that we hope help to inspire and empower our readers. These stories highlight some of the unique challenges of living with Huntington’s, as well as stories of hope, inspiration, and other topics that help to generate awareness among the Huntington’s disease community. Follow along with the series here or visit us on Facebook or Instagram using the hashtag #HDSpotlight
Porcia White and her husband, Jamie, found out together the results of her genetic testing for Huntington’s disease. (Photos courtesy of Porcia White) This is Porcia White’s story: Huntington’s disease was a part of my life from…
Read moreChrissi and Tommy Penney have been together since 2010. (Photos courtesy of Chrissi Penney) This is Chrissi Penney’s story: I’d like to share my family’s story with Huntington’s disease (HD). It’s not easy to watch your family…
From left, Roman, Todd, Brandy, and Meara Niemiller pose for a photo. (Photos courtesy of Brandy Niemiller) This is Brandy Niemiller’s story: On Valentine’s Day in 2001, I was an 18-year-old high school graduate who was unsure about…
Tanita Allen advocates for those harmed by neurological diseases, systemic injustice, and healthcare disparities. (Photos courtesy of Tanita Allen) This is Tanita Allen’s story: Life has taken me on a journey filled with unexpected twists, especially as I…
David McDonagh smiles in a photo. (Photos courtesy of David McDonagh) This is David McDonagh’s story: I don’t have “the gene,” but I’m still living with HD. Let me explain and I hope that you’ll see.
Since her sister-in-law’s diagnosis, Kemi Olafare has been advocating for the Huntington’s disease community. (Photos courtesy of Kemi Olafare) This is Kemi Olafare’s story: On reflecting on Huntington’s disease (HD) and its impact on my world, I…
Phil and Sarah Morris live in Perth, Western Australia. (Photos courtesy of Sarah Morris) This is Sarah Morris’ story: Once you know, it just takes over. For years it was the first and last thing on my mind…
Charlie Burke holds her son Cian. (Photos courtesy of Charlie Burke) This is Charlie Burke’s story: In 2019, I gave birth to my first child and found out I was at risk of Huntington’s disease (HD). My…
Martin and Sara Gardea pose for a photo on their wedding day. (Photos courtesy of Martin Gardea) This is Martin Gardea’s story: I met my wife Sara in San Francisco. We’re both artists and are the creative type.
Lauren holds a Huntington’s Disease Association banner at the Big Half London, a half-marathon. (Photos courtesy of Lauren) This is Lauren’s story: Inexplicably, Dad kept us away from Nan, who spent years in a care home. Eventually, Dad…
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