Columns

Fasting as a Means of Solidarity

When my sister died in a tragic accident a year ago, grief caused me to lose my appetite. As a result, over the next two months, I lost around 13 pounds. I found myself being content with one full meal a day. Losing weight like that usually isn’t…

Opportunities for a Better Genetic Testing Process

I’ve always tried to stay alert to the needs of the Huntington’s disease community by listening during support groups, learning at conferences and conventions, and following along with the many Huntington’s conversations on social media platforms. One topic that consistently comes up in conversations is genetic testing. Everyone has their…

Making a Difference in the Upcoming Elections

When I write this column every week, I try to only share the things that can, and will, affect my family’s battle with Huntington’s disease. Today, I would like to write about something that affects people with every disease and the families who care for them: voting.

Should I Get a Huntington’s Tattoo?

When I was a sophomore in college, I debated going blond. It was January, and every winter, I usually cut or dye my hair. I always need a change of pace during winter. Normally, I go with red or black, and my mom can easily dye my hair.

It’s Not About You … It’s About Me

I have decided to get my wife a T-shirt that reads, “It’s not you, it’s me.” I want to get it for her so she can wear it each time she visits a doctor. As if her having Huntington’s disease is not bad enough, eight months ago she started…

Mental Preparedness Is Crucial Ahead of Genetic Testing

As I mentioned in my debut column of “Negative to Positives” a couple weeks ago, I have a genuine passion for helping those undergoing genetic testing for Huntington’s disease, which is an incredibly challenging life hurdle. Many members of this community watch their parents slowly and progressively decline, and…

The Protective Mindset of a Caregiver

I’m protective, a trait typical of most men. For example, I will drive for 18 hours across the country while my wife sleeps in the passenger seat. Jill has trouble sleeping in general, and the motion of the car acts as a sedative, rocking her to sleep. Long…