“The waste of money cures itself, for soon there is no more waste.” – M.W. Harrison The cognitive damage caused by Huntington’s disease has strongly affected my brother, Gavin. It’s part of the reason he is unable to manage his financial affairs on his own. We saw…
Columns
Recently, I’ve found myself grappling with a complex mix of emotions. On the one hand, I’m filled with admiration for the incredible strength and positivity that my wife, Jill, exudes every day in the face of Huntington’s disease (HD). On the other hand, there’s a lingering sadness…
“In sickness and in health, for as long as we both shall live.” These words took on deeper meaning for our family recently after I underwent genetic testing for Huntington’s disease. Huntington’s disease took our dad’s life in May 2020, and my brother, Gavin, was…
As regular readers of this column know, I love my wife, Jill, with all my heart. I love her simplicity. I love her sense of humor. And of course, I love that she’s the mother of our wonderful daughter, Alexus. Still, I have to admit…
“It’s your road, and yours alone. Others may walk it with you, but no one can walk it for you.” — Rumi, scholar and poet Huntington’s disease has so far affected four generations of our family. We lost our dad to Huntington’s in May 2020 and…
If I were to ask people what’s due on April 15, most would say “taxes.” In my 15 years of marriage to my wife, Jill, I haven’t had to worry about that deadline before. Filing our taxes has been Jill’s job, as she’s always been able to read…
“Of all base passions, fear is most accursed.” — Joan La Pucelle (Joan of Arc), in Shakespeare’s “King Henry VI, Part I” Huntington’s disease has taken the lives of my dad, grandfather, and great-grandmother. My brother, Gavin, was diagnosed with it in January 2022, at the age…
When, on a recent Friday night after I’d worked a 60-hour week, my wife, Jill, asked me if I wanted to go to breakfast the next morning, my first instinct was to say no. Instead, I said I’d love to go. The reason was simple: I love Jill…
“All body systems would be immobilized without the nervous system. It controls and regulates every bodily activity down to the workings of the tiniest cell.” — World Book Encyclopedia of Science Because Huntington’s disease (HD) damages neurons, or nerve cells, in the brain, it can cause a variety of…
If you’d asked me 15 years ago — when I met my wife, Jill — if I believed in the concept of luck, I would’ve told you no. I would’ve told you that both good and bad things happen to us all and that luck was something we construct…
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- Finding ‘space in the middle’ to deal with life’s challenges
- What a compassionate reset looks like in life with Huntington’s
- Ingrezza engages with therapeutic target more strongly than Austedo
- Anticipation of a possible new clinical trial has us holding on to hope
- What caregiver burnout is really about — and what you can do about it
- Oral Huntington’s treatment aims to slow disease progression
- Accepting help from my loved one with HD is a lesson in partnership
- Understanding how Huntington’s disease affects my cognition