When I first read about a recent study from the University of Iowa, which showed that a common heart drug may slow the progression of Huntington’s disease, my heart skipped a beat. My wife, Jill, battles Huntington’s, which has been our family’s greatest challenge — mainly because there’s been so little…
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Picture a family tree, its branches stretching toward the sky, vibrant with life, yet bearing the deep scars of an inherited gene mutation — one that causes Huntington’s disease (HD). For those unfamiliar, this neurodegenerative illness ruthlessly destroys the mind and body by erasing memories and stripping away independence.
Living with Huntington’s disease (HD) can feel like an uphill battle, but self-care can make a meaningful difference in managing its symptoms. The key to a successful self-care routine lies in personalizing it to fit your unique needs and lifestyle. These seven tips have helped me manage my…
To ring in the new year, I wanted to share a fun fact about my wife, Jill: She takes her “Beetlejuice” very, very seriously, and nothing — not even Huntington’s disease — will ever take that away from her. When the sequel to the 1988 cult classic was announced…
Living with Huntington’s disease (HD) means navigating a world of unpredictability — fluctuating symptoms, physical limitations, emotional challenges, and the stigma that often comes with a chronic illness. Setting healthy boundaries has been crucial to managing my energy, maintaining relationships, and living my best life despite the hurdles. Following…
Living with Huntington’s disease (HD) is a journey filled with ups and downs, uncertainties, and moments that test our mental, emotional, and physical strength. Over the years, I’ve realized that practicing self-compassion isn’t just beneficial — it’s necessary. When the world feels heavy, or when my symptoms remind…
Sometimes our best-laid plans go sideways, and what emerges is better than anything we could’ve orchestrated. That’s what I learned the year my wife, Jill, was diagnosed with Huntington’s disease (HD). When your world gets turned upside down, you grasp for anchors — those memories of better times that…
Living with Huntington’s disease (HD) brings unique challenges — physical, emotional, and mental. Navigating its complexities while maintaining a sense of peace and presence in my daily life hasn’t always been easy, but mindfulness has become an essential tool in my toolbox. Following are five ways I practice mindfulness…
My wife, Jill, has battled being gene-positive with Huntington’s disease (HD) with remarkable grace and resilience. Despite her difficulties, she continues to find joy in the simple things, such as the companionship of a furry friend. Our beloved dog, Baby Girl, passed away in 2022, leaving a…
Anxiety is a frequent companion for many of us living with Huntington’s disease (HD). Whether it’s the overwhelming stress of managing symptoms, navigating social interactions, or even planning for the future, anxiety can creep in and overshadow our daily lives. Over the years, I’ve developed strategies to manage…
Recent Posts
- Combining 2 drugs could slow nerve cell death in Huntington’s: Study
- Your voice matters to the Huntington’s disease community
- Tiny systems that keep my life moving with Huntington’s disease
- UK company selects HRN001 as its lead Huntington’s therapy candidate
- Giving thanks for the brave volunteers who participate in HD clinical trials