A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box

Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Life Is Short, So Live It Well

The anniversary of my sister’s death is coming up in about a month. Rose died on Halloween last year after a massive red oak tree fell on the car she was in during a fierce storm. The car was parked in her driveway, and the tree was from a…

Learning to Expect the Unexpected

My wife, Jill, and I have not been to the local movie theater in months. It’s been so long that we can’t remember the last movie we saw there. By contrast, we averaged about two movies a month before the pandemic struck. With the recent reopening of our town’s theaters,…

Writing Keeps This Caregiver Sane

I stumbled into my future profession when I took a creative writing class as a junior in high school. I took the class because it was an elective, something easy. In other words, it was what my teenage self considered a “blow-off,” something that didn’t require studying. Studying, I thought…

Learn How to Party On, Dude

One of summer’s guilty pleasures is watching mindless movies. On a recent weekend, Jill and I watched “Bill and Ted Face the Music,” which is so egregiously and heinously bad, it’s good, dude. (This is how the time-traveling characters talk to each other. Needless to say, the dialogue is…

As Caregivers, We Can Choose to Be Empathetic and Patient

My mom is dying. She’s 90, has dementia, can’t walk, yells angrily at times, and lives in an assisted living home, where visitors are frowned upon because of the COVID-19 threat. Several days ago, an ambulance picked her up because she had vomited and was unresponsive. Several hours after visiting…

Telemedicine Makes Life Easier for Patients

Last year, I wrote about the possibility of telemedicine visits for Huntington’s patients with the Huntington’s Disease Society of America’s Center of Excellence in Chicago. My wife, Jill, and I were excited about this possibility because she has “white coat syndrome.” As someone who has witnessed Jill’s anxiety,…

Living Outside the Box

If you could go anywhere on vacation, would you take your time planning the perfect trip? Would you look at all of the travel websites in hopes of finding the most interesting places to go? Would you spend large amounts of money to see all of the typical tourist attractions?…

Lessons Learned from Watching ‘Scooby-Doo’

Did you ever watch cartoons when you were young? One of my favorites as a child was “Scooby-Doo,” an animated cartoon series that featured teenagers Fred, Daphne, Velma, and Shaggy. They also had a talking brown Great Dane named Scooby-Doo. This motley crew of mystery-solvers would travel from town…