As most of you know, my wife and daughter tested positive for Huntington’s disease. They have witnessed the brutality that Huntington’s can inflict, and they have every right to curl up in bed every day and cry. But they don’t. They get up and continue forward with what I…
A Family Tradition - a Column by Carlos Briceño
I’m not a nurse or a social worker. In other words, I haven’t received formal training in caregiving from a college or a university. But I do feel that I’m prepared to do well as a caregiver because of the training I received as a child. I grew up in…
Facing the Pain of Dying Younger
I saw a pig fly the other day. OK, that’s a lie. But it sure felt like one did because my wife, Jill, cried. It’s rare for her to cry. Crying makes her feel worse than whatever made her cry in the first place, so she tries to avoid it.
In this week’s column, I’d like to share a few details about a typical day for my wife, Jill. When the alarm sounds at 5:20 a.m., she wakes up and gets ready to go to work as a secretary in a small private school. Jill starts her workday by helping…
Caregiving Is a Marathon
My mother-in-law, Edwina, visited us right before Christmas. I’m proud to say that I’m her favorite son-in-law. (That’s a family joke. I’m her only son-in-law.) Her husband, Ken, died from Huntington’s disease in 2011. During her visit, I asked her what it’s like to be a caregiver for someone you…
Patience doesn’t just happen. It takes work. Would you enter a weightlifting competition, run a marathon, or perform stand-up comedy without planning and practicing? You probably wouldn’t. So why do we expect ourselves just to be patient? When my wife, Jill, learned that she carries the Huntington’s gene, we started…
My wife is extremely low maintenance. For instance, she’s allergic to chocolate and flowers, so she doesn’t want either for Valentine’s Day. Even if she weren’t allergic, she still wouldn’t want them because she believes Valentine’s Day is a manufactured holiday. So we essentially don’t acknowledge it. (However,…
My wife, Jill, excels at many things. She’s an excellent cook, gift giver, and advice dispenser. She also excels in her dislike of visiting a doctor’s office. As I’ve written before, she has “white coat syndrome.” But we have received some potentially awesome news that might ease some of…
Thanksgiving always seems to occur out of the blue, and this year was no different. One minute it’s summer and the weather is warm. You blink, and the leaves are changing. Blink again, and daylight savings time ends. And then you wake up, and it’s Thanksgiving. My family differs from…
Time Is More than Money
This week’s column was going to be about patience, but before I could write it I received a text from my wife, Jill. She asked if I had used our credit card at a place where I don’t normally shop. The answer was a resounding no. My wife handles…
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