Reality bites. That was the name of a 1994 romantic comedy movie starring Winona Ryder and Ethan Hawke. It’s about four recent graduates finding out how difficult life can be when searching for a decent job and true love after college. In pop culture, that phrase eventually came to…
A Family Tradition - a Column by Carlos Briceño
May is Huntington’s Disease Awareness Month. While I was starting to write this week’s column, my wife, Jill, received some devastating news: Her second cousin, Pamela Averman, had passed away from pneumonia on April 28. Because this is a Huntington’s disease column,…
The first time I met my wife, Jill, she told me she wasn’t comfortable with “PDA.” Being a smart aleck, I asked her why she didn’t like personal digital assistants. (The old PalmPilots were known as PDAs.) She flashed the patient smile of someone who knew it would require…
Forced Family Time
My wife, Jill, and I live in Illinois, where the governor has declared a stay-at-home order for our entire state. It’s been weeks now. He also suggests canceling summer events and has decided that children will not return to school for the remainder of the academic year. We are…
The Realities of Rare Diseases
Social distancing seems to be the trend these days. Several reality shows illustrate what I mean: participants practice social distancing and isolation to such an extent that everyone communicates to each other behind walls (in “Love Is Blind“) and computer screens (in “The Circle“). Now, though, this is…
We Are Two People with One Heart
My home has been super quiet for the past several days, a silence that will continue for several more as my wife, Jill, visits our daughter on the East Coast. Jill was supposed to be gone for only four days from Wednesday to Sunday, but her trip was extended when…
Believing in the Impossible
When she was little, my daughter, Alexus, visited a 7-Eleven store with my wife, Jill. To reward Alexus’s wonderful report card, Jill said she could choose any treat. Our daughter said she wanted one of those scratch-off lottery tickets. Jill patiently tried to explain that no one ever really…
I can’t stand dogs. They bark a lot. They smell. They require a lot of attention. They tend to whine when I’m on the phone. So, yeah, I can’t stand them. Relax, people! I’m just kidding! I wanted to get your attention for a couple of minutes so you could…
This week marks a year since I started writing my column, “A Family Tradition.” Having a forum like this has provided an amazing opportunity to share about the journey my wife, Jill, and I have embarked on since her Huntington’s disease diagnosis in 2018. Honestly, I wish neither she…
Listen, do you hear that sound? It’s the sound of people panicking. The cause of their panic? The coronavirus. It’s difficult to avoid the topic as it’s constantly on the TV news, on the front pages of every newspaper, and all over the internet. It’s the subject of jokes…
Recent Posts
- Tiny systems that keep my life moving with Huntington’s disease
- UK company selects HRN001 as its lead Huntington’s therapy candidate
- Giving thanks for the brave volunteers who participate in HD clinical trials
- The challenges of navigating dating while living with Huntington’s disease
- Guest Voice: I hate Huntington’s disease, but I love my husband