A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box

Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

It’s All About Respect

Aretha Franklin sang about it. Rodney Dangerfield joked about it by saying he never got any. The Boston Red Sox got it after finally winning the World Series again in 2004. The “it” I’m referring to, of course, is respect. A recent trip to the airport by…

Discovering the Healing Power of Laughter

When something attacks you, having a good defense to thwart the attack is an invaluable tool in staying alive. In some ways, because they both have been diagnosed with Huntington’s disease, my wife, Jill, and our daughter are under attack. This disease aims to attack their minds and bodies,…

Adjusting to Our New Normal

Learning how to balance life as a caregiver and husband can be delicate. I recently mentioned that my wife, Jill, and I attended a symposium for Huntington’s disease earlier this year. I learned some valuable information that day, including that Jill may one day experience changes in the way…

Are You an Open or Closed Book?

I am a writer, and as such, I like to think of people as books. Either you are an open book or a closed one. Let me explain. My wife, Jill, and I have so many things in common that sometimes I forget that we don’t have a few things…

Do You Listen or Wait Your Turn to Talk?

While talking about family illnesses with friends recently, I sat back and watched people discussing cancer, dementia, and myriad other life-altering conditions. Everyone had a story to tell about taking care of someone with an illness or experiencing it themselves. I noticed that, after each person shared, the group moved…