A Family Tradition - a Column by Carlos Briceño

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Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Adjusting to Our New Normal

Learning how to balance life as a caregiver and husband can be delicate. I recently mentioned that my wife, Jill, and I attended a symposium for Huntington’s disease earlier this year. I learned some valuable information that day, including that Jill may one day experience changes in the way…

Are You an Open or Closed Book?

I am a writer, and as such, I like to think of people as books. Either you are an open book or a closed one. Let me explain. My wife, Jill, and I have so many things in common that sometimes I forget that we don’t have a few things…

Do You Listen or Wait Your Turn to Talk?

While talking about family illnesses with friends recently, I sat back and watched people discussing cancer, dementia, and myriad other life-altering conditions. Everyone had a story to tell about taking care of someone with an illness or experiencing it themselves. I noticed that, after each person shared, the group moved…

My Daughter’s Diagnosis Won’t Defeat Her

Here’s the scene: My wife, Jill, and I are at Jill’s work. We’re on speakerphone with our daughter’s friend, who is at a hospital almost 1,000 miles away with three other friends and Lou, our daughter. (Lou is our daughter’s nickname.) The reason for the call is to listen in…

The Monsters Under the Bed

“The Talk” has a very different meaning to most people than it does in our home. When our daughter was born, my wife, Jill, had a very clear wish that we would always be open and honest with our daughter about things. By “things,” Jill meant most everything. She wanted…