A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box

Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Does Fear Freeze or Fuel You?

Zombies, spiders, losing your job. What is your greatest fear? Mine used to be drowning, but not anymore. My biggest fear now is losing the woman I love and adore to Huntington’s disease (HD). Over the last year, our family has had its ups and downs. The gene-positive diagnosis of…

Finding Happiness in the Little Things

When Jill and I lived in Florida, we loved being outside, going to local parks, walking on the beach, and hanging out with friends and family. Life was good. Then we moved to the Midwest, and we went to a city where we had no family and knew no…

Is It a Hobby or an Obsession?

I am standing at the end of the beauty aisle at our local grocery store. I’m watching my wife, Jill, look at boxes of press-on nails — again. I think back to when she was my girlfriend, back to when she was someone who said she didn’t have any hobbies,…

It’s All About Respect

Aretha Franklin sang about it. Rodney Dangerfield joked about it by saying he never got any. The Boston Red Sox got it after finally winning the World Series again in 2004. The “it” I’m referring to, of course, is respect. A recent trip to the airport by…

Discovering the Healing Power of Laughter

When something attacks you, having a good defense to thwart the attack is an invaluable tool in staying alive. In some ways, because they both have been diagnosed with Huntington’s disease, my wife, Jill, and our daughter are under attack. This disease aims to attack their minds and bodies,…