I couldn’t believe what I’d just heard. My wife, Jill, told me she recognized a song but couldn’t remember the lyrics. This sent me spiraling down what she calls the Huntington’s Disease Black Hole. It made me wonder if her memory lapse was yet another symptom of…
A Family Tradition - a Column by Carlos Briceño
As I type this, my heart swells with emotion. My family’s journey isn’t the easiest, but we savor it because we’re grateful for every precious second we spend together. My wife, Jill, battles Huntington’s disease (HD) with great resiliency and courage, but it’s obvious that the condition has…
After my wife, Jill, started experiencing symptoms that led her to suspect she had inherited the faulty gene that causes Huntington’s disease (HD), she decided to find out for certain. When she told me she wanted to have her DNA tested for HD, my first question…
Last year, a chat about a Halloween decoration led to a conversation about Huntington’s disease (HD). It all began when my wife, Jill, picked up an item at the home of our daughter, Alexus, when we visited her in Boston. It was a long, hollow tube —…
My wife, Jill, recently discovered that what she’d thought was a symptom of her Huntington’s disease (HD) was really something else. It reminded us that just because she has a rare, terminal illness doesn’t mean it’s the cause of every medical issue. I began to realize this…
Talk therapy is great, but finding someone who understands you and meets your needs is the key to its success. When my wife, Jill, was diagnosed with Huntington’s disease (HD) in 2018, the doctor recommended that she see a therapist. While Jill had nothing against seeing someone for…
My wife, Jill, and I were recently talking about an encounter I had. As sometimes happens, a result of the conversation with Jill was a lesson that developed over the next few days about Jill’s terminal illness. The conversation centered on feeling belittled in my work as a…
I love stories. It’s why I have a passion for reading. I enjoy being transported to another world by the creative ways writers string words together. One of the many reasons I love my wife, Jill, is because she’s an incredible storyteller. She could make walking up the stairs…
I’ve learned a lot from my wife, Jill, who is gene-positive for Huntington’s disease (HD), about the importance of the phrase “I promise.” In the past, I often made promises without considering what they meant to others. As a child, I’d say, “I promise I’ll clean my room,”…
After 15 years of marriage, I was finally able to persuade my wife, Jill, to join me in exploring my love of reading. I hope that despite her Huntington’s disease diagnosis, she will never stop reading. I’m an avid reader. If you ask Jill, she’d say that’s an…
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