A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Genetic disease casts dark shadows over a family tree

Picture a family tree, its branches stretching toward the sky, vibrant with life, yet bearing the deep scars of an inherited gene mutation — one that causes Huntington’s disease (HD). For those unfamiliar, this neurodegenerative illness ruthlessly destroys the mind and body by erasing memories and stripping away independence.

Sometimes absurd things can bring us solace in life with HD

Sometimes our best-laid plans go sideways, and what emerges is better than anything we could’ve orchestrated. That’s what I learned the year my wife, Jill, was diagnosed with Huntington’s disease (HD). When your world gets turned upside down, you grasp for anchors — those memories of better times that…

What we are grateful for this year

After my wife, Jill, was diagnosed with Huntington’s disease (HD) in 2018, we gained a new level of appreciation for people affected by terrible storms and other natural disasters. The rare disease she inherited made us realize, in deeper ways, that what she’s experiencing as her neurodegenerative illness progresses…

How my wife fights Huntington’s with the spirit of a warrior

My wife, Jill, has always been a fighter, no question about it. Before her Huntington’s disease diagnosis, she’d march into any battle against anyone or anything without hesitation, no matter the stakes. After she learned that she’d experience the same decline from Huntington’s as her father did, though, she seemed to…

How a personal emergency alert device can benefit those with HD

If there’s one thing I know about my wife, Jill, who’s gene-positive for Huntington’s disease (HD), it’s that she seems to have a funny relationship with electronics. Over the years, her cellphones have developed quirks: missed calls, delayed texts, ghost vibrations when there’s nothing there. It’s not that she’s…