A Family Tradition - a Column by Carlos Briceño

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Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

What we are grateful for this year

After my wife, Jill, was diagnosed with Huntington’s disease (HD) in 2018, we gained a new level of appreciation for people affected by terrible storms and other natural disasters. The rare disease she inherited made us realize, in deeper ways, that what she’s experiencing as her neurodegenerative illness progresses…

How my wife fights Huntington’s with the spirit of a warrior

My wife, Jill, has always been a fighter, no question about it. Before her Huntington’s disease diagnosis, she’d march into any battle against anyone or anything without hesitation, no matter the stakes. After she learned that she’d experience the same decline from Huntington’s as her father did, though, she seemed to…

How a personal emergency alert device can benefit those with HD

If there’s one thing I know about my wife, Jill, who’s gene-positive for Huntington’s disease (HD), it’s that she seems to have a funny relationship with electronics. Over the years, her cellphones have developed quirks: missed calls, delayed texts, ghost vibrations when there’s nothing there. It’s not that she’s…