Because of the COVID-19 pandemic, Huntington’s Disease Awareness Month organizers have come up with creative ways to show support…
Articles by Mary Chapman
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
Railway signalman Sandy Patience has witnessed the devastating effects of Huntington’s disease on family members. When he learned two…
Encouraging the families of people affected by Huntington’s disease to donate, post-mortem, their brain and other organs so as to…
Aiming to raise awareness about Huntington’s disease (HD) while also commemorating a decade of community service, HD Reach presented its annual…
In support of ongoing development of a prospective new therapy for Huntington’s disease, the California Institute for Regenerative…
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about…