A Genetic Lottery
— Rebecca Field

“I wake up panicking and find it hard to unclench the ball of anxiety tightening in my chest.” — Melanie Pearson, from her first blog post about caring for her brother with Huntington’s…

“The brain is like a muscle. When it is in use we feel very good. Understanding is joyous.” — Carl Sagan  A chance meetup last summer with a local in my community led to…

Huntington’s disease presents a complex range of behavioral, cognitive, physical, and psychological symptoms. It poses many challenges to families, friends, caregivers, and people who are living alone with this condition. Huntington’s…

I recently connected with patient advocate Tanita Allen through my work for Huntington’s Disease News. In May, for Huntington’s Disease Awareness Month, Tanita kindly shared the story of her own Huntington’s…

We’re now halfway through our summer here in the U.K., but you wouldn’t necessarily know it this year. Only last week, I needed to wear jumpers and tights because of unseasonably chilly temperatures. We’ve…

“A friend is someone who knows all about you and still loves you.” — Elbert Hubbard Huntington’s disease has affected several generations of my family, taking the lives of my dad, granddad,…

“When it started getting bad, it was like watching her drown.” That’s how a young man named Morgan described watching his mother’s Huntington’s disease (HD) progress. His interview was part of a video…

In my early 20s, I went to see my general practitioner because I’d been noticing my dad having symptoms of what I thought could be Huntington’s disease. In hindsight, he’d been displaying…

“Love and peace.” — Marjorie Guthrie’s signature sign-off on letters and notes Marjorie Guthrie was a dancer and teacher who started her own dance school. She also was the second wife of Woody…

“Can they tell by looking at me how useless and weak and flimsy and [artificial] (and how foney) I feel?” — notes from Woody Guthrie, dated Aug. 21, 1952 Woody Guthrie was an…

“And my mother … that was a little too much for her nerves, her something.” This comment, made in 1940, was the first time American singer-songwriter Woody Guthrie had publicly alluded to…