Love Is Stronger Than Huntington’s Disease
By the time you read this, an important day in my family’s life will have occurred: Alexus, our only daughter, got married on Nov. 25. She and her now husband, René, met in their…
A Family Tradition
— Carlos Briceño
Carlos Briceño is a journalist and director of communications who, through the grace of God, has been blessed with a brilliant, beautiful, and courageous wife and daughter. He currently lives in Maryland, about a half hour away from Washington, D.C., with his wife, Jill. In 2018, Jill found out she was gene-positive for Huntington’s disease at the age of 41, while his daughter found out she was gene-positive for HD in 2019 when she was 22. Jill and Carlos write about their day-to-day struggles and triumphs to share their knowledge and to let others know they are not alone. Carlos loves to evangelize, read, play soccer, and pepper his conversations with — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)
Featured Post
A call for changes to the Genetic Information Nondiscrimination Act
As we approach Rare Disease Day on Feb. 28, I find myself reflecting on the journey of my wife, Jill, with Huntington’s disease (HD) and the struggles that families affected by genetic conditions…
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