Many of us are used to being so busy that we don’t have time to think, let alone spend quality time with our loved ones. But now we have no choice. Running to the mall, attending sporting events, and even grocery shopping are things of the past, thanks to delivery services like Instacart. So now what do we do? Before many of us is an opportunity that we never seemed to have in the past: The chance to get to know our family members. The chance to find out that we were once merely coexisting with one another but that we can now make the changes needed to be a strong family unit.
When Alexus, our daughter, was little, Jill would often spend the evening doing activities with her. She’d delay things like catching up on work or doing housework until after Alexus went to bed — often late at night. If Alexus asked her to do something, like play a game, she would play it; if Alexus wanted to sit and read, that’s what they would do.
As Alexus grew older, she started playing games geared toward older children, such as Sorry! and Uno. Some of my favorite memories with Jill and Alexus are from sitting around the table playing games. You have to understand one thing about my family: they don’t like to lose. So, if I was winning, it was not uncommon to receive “death threats” from one or both of them.
Her friend chose a different game and left our house alive. Although they are extremely competitive, Jill and Alexus understand that, win or lose, we have spent time together that we will cherish forever. We have hope for a Huntington’s cure, but for now, we act like today is all we have. We hope everyone is learning this same valuable lesson.
Note: Huntington’s Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Huntington’s Disease News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Huntington’s disease.
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