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January 30, 2023 Columns by Carlos Briceño

What Is Chorea? A Helpful Website Provides Answers

Huntington’s disease (HD) is hereditary. Because the father of my wife, Jill, was gene-positive for HD, she knew she had a 50% chance of getting the disease. Years ago, Jill told me to be honest with her. “If you think I’m showing symptoms, I want you to…

January 12, 2022 Columns by B.J. Viau

Changing Our Mindset About Genetic Testing for Huntington’s Disease

In many previous columns, I’ve shared the statistic that only about 10% of those at risk for Huntington’s disease (HD) have chosen to get predictive genetic testing. This is a brave decision for the few in this small slice of the HD pie, considering that there aren’t…

Recent Posts

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  • Enzymes play opposing roles in Huntington’s disease development
  • An ‘aha!’ moment about a father’s neurological symptoms
  • Finding joy and purpose while living with Huntington’s
  • Empowering others with Huntington’s through storytelling
  • PTC518 found to reduce huntingtin protein levels in 1 year in trial
  • Travel and Huntington’s disease are parts of our marriage
  • With the HD Parity Act stalled, is it time to shift gears?
  • Personalizing my self-care routine in life with Huntington’s disease
  • My family helps me manage the symptoms of Huntington’s


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