Tanita Allen, who lives in Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. Her approach to future care makes tough transitions easier for loved ones.

The logistical resources that I have in place is that I’ve created a healthcare proxy. I was diagnosed in 2012 so my healthcare proxy and my will has changed significantly over the years.

But I’m in the process of revising my will; my healthcare proxy always changes, sometimes, little things like: Do I want a feeding tube? Do I not want a feeding tube? Should I ever get in that situation? That’s an example. Do I want to be in a nursing facility?

And I’ve actually been doing research on that as far as like places that are able to care for people with our needs — having HD.

My mom is actually in a facility that I am looking into for myself, should I ever need those services or that level of care. They’re taking great care of my mom, and I’m thinking that I probably would be taken care of well there as well.