Negative to Positives — B.J. Viau

I have only known one way to live in a family affected by a rare disease, specifically Huntington’s disease (HD). That way is not to sit back and wait for HD to come, but rather to seek it out…

Editor’s note: This column briefly mentions the topic of suicide. Please find resources for help at the end of the column. Unlike many rare genetic disorders, Huntington’s disease doesn’t have an approved treatment regimen that will halt, stop, or…

As I briefly touched on in my previous column, “Opportunities for a Better Genetic Testing Process,” the testing process in the Huntington’s disease community is a bit like the Wild West. Depending on your location, there are so…

I’ve always tried to stay alert to the needs of the Huntington’s disease community by listening during support groups, learning at conferences and conventions, and following along with the many Huntington’s conversations on social media platforms. One topic that…

As I mentioned in my debut column of “Negative to Positives” a couple weeks ago, I have a genuine passion for helping those undergoing genetic testing for Huntington’s disease, which is an incredibly challenging life hurdle. Many members…

Like many of you reading, I am from a Huntington’s disease (HD) family. I learned at the young age of 9 that my mom would progressively, slowly lose her ability to do absolutely everything. Around that same time, I…