December 12, 2019December 12, 2019
‘Co-produced’ Walking Group Beneficial for Patients, But Better Models Are Needed, Study Finds
News
Joining a “co-produced” walking group can be beneficial for people with Huntington’s disease, increasing their confidence, strength, and ability ... Read more
December 10, 2019
Gene Therapy Takes Center Stage at 2019 NORD Summit
News
With so much recent publicity surrounding gene therapy, it’s no surprise that the topic was a major focus of ... Read more
December 10, 2019December 10, 2019
Poorer Ability to Recognize Face-like Objects Found in Presymptomatic Patients
News
An inability to correctly identify face-like objects and fewer brain signals associated with facial recognition were found in people ... Read more
December 10, 2019December 6, 2019
Could Telemedicine Improve Quality of Care for Huntington’s Patients?
A Family Tradition - a Column by Carlos Briceño, Columns
My wife, Jill, excels at many things. She’s an excellent cook, gift giver, and advice dispenser. She also excels ... Read more
December 6, 2019December 4, 2019
Sometimes Distracting Yourself Is a Form of Self-care
Always Looking Forward – a Column by Alexus Jones, Columns
Over this past holiday, my wonderful parents got me the Nintendo Switch and the new Pokemon game (specifically Shield, ... Read more
December 5, 2019
HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases
News
Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases ... Read more
December 5, 2019December 5, 2019
Early Study Identifies 3 Small Molecules That Target Root Cause of Huntington’s
News
Researchers have identified three new small molecules that significantly reduce the formation of toxic aggregates of mutant huntingtin — ... Read more
December 3, 2019December 3, 2019
DEA Clears Way for MMJ to Import Cannabis Compounds for Trials in Huntington’s Disease and MS
News
MMJ International Holdings, a pharmaceutical company focused on the development of cannabis-based therapeutic products, will soon begin testing its ... Read more
December 3, 2019November 27, 2019
It’s Important to Give Thanks Daily
A Family Tradition - a Column by Carlos Briceño, Columns
Thanksgiving always seems to occur out of the blue, and this year was no different. One minute it’s summer ... Read more
November 26, 2019November 22, 2019
Time Is More than Money
A Family Tradition - a Column by Carlos Briceño, Columns
This week’s column was going to be about patience, but before I could write it I received a text ... Read more
November 22, 2019November 21, 2019
A Family Tragedy Caused Me to Reevaluate My Huntington’s Status
Always Looking Forward – a Column by Alexus Jones, Columns
At around 1 a.m. on Nov. 1, 2019, my aunt was pronounced dead. She had been waiting with her ... Read more
November 21, 2019November 19, 2019
‘Just Show Up’: Accepting Support from the Huntington’s Community
Columns, From Where I Stand - a Column by Erin Paterson
For a time following my diagnosis as gene-positive for Huntington’s disease (HD), I avoided elderly people. The mere glimpse ... Read more

November 21, 2019November 21, 2019

Early Study Finds Huntingtin-lowering Compounds That Show Therapeutic Potential

News

Researchers have developed a new class of compounds that tackles the root cause of Huntington’s disease, opening up new avenues for the development of novel therapies for the disease. ... Read more

November 19, 2019November 16, 2019

Focus on the Good in Every Moment

A Family Tradition - a Column by Carlos Briceño, Columns

So which is worse: a long, drawn-out illness or a sudden, unexpected death? As the caregiver of a loved one with Huntington’s disease, I’m dealing with someone who is ... Read more

November 15, 2019November 13, 2019

I Can’t Help Feeling Guilty About Living Far from My Mom

Always Looking Forward – a Column by Alexus Jones, Columns

While traveling to a recent event on the T, greater Boston’s public transport system, I felt as if I were in a generic movie about a city-dwelling 20-something. I ... Read more

November 14, 2019November 14, 2019

Mini Pig Model of Huntington’s May be Advantageous in Preclinical Trials, Researchers Say

News

The mini pig model of Huntington’s disease not only has a similar brain anatomy to humans, but also shows the slow and age-dependent neurodegeneration and weight loss that’s characteristic ... Read more

November 13, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

News

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 13, 2019November 14, 2019

Q-Motor Tool Shows Promise in Detecting Motor Changes in At-risk Children, Study Shows

News

Q-Motor, a promising motor-assessment tool for adults with Huntington’s disease, also provides non-invasive, easy, and sensitive measures to gauge motor function changes in children and adolescents, a study shows. The ... Read more

November 12, 2019November 8, 2019

United in Grief, We Are Huntington’s Strong

A Family Tradition - a Column by Carlos Briceño, Columns

Author’s note: This column is for anyone with Huntington’s disease or their family and friends. Dear Huntington’s community: Many of us don’t know each other, but we are bound ... Read more

November 7, 2019November 7, 2019

Nerve Cell Development Appears Delayed in Juvenile Huntington’s, Stem Cell Study Reports

News

Stem cells created from cells taken from juvenile Huntington’s disease (JHD) patients showed a delay in developing into mature neurons, but one that is reversible, a study reports. The study, ... Read more

November 5, 2019November 5, 2019

Microprotein of Mitochondria Helps Regulate Protein Folding and Cell Stress Linked to Disease, Study Finds

News

PIGBOS — a newly discovered mitochondrial microprotein involved in a cellular stress-response mechanism called unfolded protein response (UPR) — might be a treatment target for neurodegenerative diseases like Huntington’s, a ... Read more

November 5, 2019October 30, 2019

Why Blend In When You Were Born to Stand Out?

A Family Tradition - a Column by Carlos Briceño, Columns

The first time I met Jill’s father was interesting. I hadn’t met someone with Huntington’s before, but Jill had told me all about it. Huntington’s was a movement disorder, ... Read more

November 1, 2019October 29, 2019

I Want to Freeze Time to Live Forever in the Precious Moments

Always Looking Forward – a Column by Alexus Jones, Columns

Some moments are so perfect that you wish time would stop so that some part of you could live in that moment forever. These moments can be significant milestones, ... Read more

October 31, 2019October 31, 2019

MC10 and University of Vermont Establish Partnership to Study Gait Impairment in Huntington’s, other Movement Disorders

News

MC10 and the University of Vermont have teamed up to advance understanding of gait impairments in Huntington’s disease and other movement disorders. The partnership will combine MC10’s BioStamp nPoint ... Read more

‘Co-produced’ Walking Group Beneficial for Patients, But Better Models Are Needed, Study Finds

Gene Therapy Takes Center Stage at 2019 NORD Summit

Poorer Ability to Recognize Face-like Objects Found in Presymptomatic Patients

Could Telemedicine Improve Quality of Care for Huntington’s Patients?

Sometimes Distracting Yourself Is a Form of Self-care

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

Early Study Identifies 3 Small Molecules That Target Root Cause of Huntington’s

DEA Clears Way for MMJ to Import Cannabis Compounds for Trials in Huntington’s Disease and MS

It’s Important to Give Thanks Daily

Time Is More than Money

A Family Tragedy Caused Me to Reevaluate My Huntington’s Status

‘Just Show Up’: Accepting Support from the Huntington’s Community

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