November 19, 2019November 16, 2019
Focus on the Good in Every Moment
A Family Tradition - a Column by Carlos Briceño, Columns
So which is worse: a long, drawn-out illness or a sudden, unexpected death? As the caregiver of a loved ... Read more
November 15, 2019November 13, 2019
I Can’t Help Feeling Guilty About Living Far from My Mom
Always Looking Forward – a Column by Alexus Jones, Columns
While traveling to a recent event on the T, greater Boston’s public transport system, I felt as if I ... Read more
November 14, 2019November 14, 2019
Mini Pig Model of Huntington’s May be Advantageous in Preclinical Trials, Researchers Say
News
The mini pig model of Huntington’s disease not only has a similar brain anatomy to humans, but also shows ... Read more
November 13, 2019
Rare Disease Film Festival Highlights Patient and Researcher Unity
News
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing ... Read more
November 13, 2019November 14, 2019
Q-Motor Tool Shows Promise in Detecting Motor Changes in At-risk Children, Study Shows
News
Q-Motor, a promising motor-assessment tool for adults with Huntington’s disease, also provides non-invasive, easy, and sensitive measures to gauge motor ... Read more
November 12, 2019November 8, 2019
United in Grief, We Are Huntington’s Strong
A Family Tradition - a Column by Carlos Briceño, Columns
Author’s note: This column is for anyone with Huntington’s disease or their family and friends. Dear Huntington’s community: Many ... Read more
November 7, 2019November 7, 2019
Nerve Cell Development Appears Delayed in Juvenile Huntington’s, Stem Cell Study Reports
News
Stem cells created from cells taken from juvenile Huntington’s disease (JHD) patients showed a delay in developing into mature neurons, ... Read more
November 5, 2019November 5, 2019
Microprotein of Mitochondria Helps Regulate Protein Folding and Cell Stress Linked to Disease, Study Finds
News
PIGBOS — a newly discovered mitochondrial microprotein involved in a cellular stress-response mechanism called unfolded protein response (UPR) — ... Read more
November 5, 2019October 30, 2019
Why Blend In When You Were Born to Stand Out?
A Family Tradition - a Column by Carlos Briceño, Columns
The first time I met Jill’s father was interesting. I hadn’t met someone with Huntington’s before, but Jill had ... Read more
November 1, 2019October 29, 2019
I Want to Freeze Time to Live Forever in the Precious Moments
Always Looking Forward – a Column by Alexus Jones, Columns
Some moments are so perfect that you wish time would stop so that some part of you could live ... Read more
October 31, 2019October 31, 2019
MC10 and University of Vermont Establish Partnership to Study Gait Impairment in Huntington’s, other Movement Disorders
News
MC10 and the University of Vermont have teamed up to advance understanding of gait impairments in Huntington’s disease and ... Read more
October 29, 2019October 29, 2019
Inflammation and Changes in Brain’s Striatum Precede Huntington’s Symptoms, Study Finds
News
Massive inflammation and other changes in the striatum, an area of the brain selectively destroyed in Huntington’s disease (HD), ... Read more

November 19, 2019November 16, 2019

Focus on the Good in Every Moment

A Family Tradition - a Column by Carlos Briceño, Columns

So which is worse: a long, drawn-out illness or a sudden, unexpected death? As the caregiver of a loved one with Huntington’s disease, I’m dealing with someone who is ... Read more

November 15, 2019November 13, 2019

I Can’t Help Feeling Guilty About Living Far from My Mom

Always Looking Forward – a Column by Alexus Jones, Columns

While traveling to a recent event on the T, greater Boston’s public transport system, I felt as if I were in a generic movie about a city-dwelling 20-something. I ... Read more

November 14, 2019November 14, 2019

Mini Pig Model of Huntington’s May be Advantageous in Preclinical Trials, Researchers Say

News

The mini pig model of Huntington’s disease not only has a similar brain anatomy to humans, but also shows the slow and age-dependent neurodegeneration and weight loss that’s characteristic ... Read more

November 13, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

News

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 13, 2019November 14, 2019

Q-Motor Tool Shows Promise in Detecting Motor Changes in At-risk Children, Study Shows

News

Q-Motor, a promising motor-assessment tool for adults with Huntington’s disease, also provides non-invasive, easy, and sensitive measures to gauge motor function changes in children and adolescents, a study shows. The ... Read more

November 12, 2019November 8, 2019

United in Grief, We Are Huntington’s Strong

A Family Tradition - a Column by Carlos Briceño, Columns

Author’s note: This column is for anyone with Huntington’s disease or their family and friends. Dear Huntington’s community: Many of us don’t know each other, but we are bound ... Read more

November 7, 2019November 7, 2019

Nerve Cell Development Appears Delayed in Juvenile Huntington’s, Stem Cell Study Reports

News

Stem cells created from cells taken from juvenile Huntington’s disease (JHD) patients showed a delay in developing into mature neurons, but one that is reversible, a study reports. The study, ... Read more

November 5, 2019November 5, 2019

Microprotein of Mitochondria Helps Regulate Protein Folding and Cell Stress Linked to Disease, Study Finds

News

PIGBOS — a newly discovered mitochondrial microprotein involved in a cellular stress-response mechanism called unfolded protein response (UPR) — might be a treatment target for neurodegenerative diseases like Huntington’s, a ... Read more

November 5, 2019October 30, 2019

Why Blend In When You Were Born to Stand Out?

A Family Tradition - a Column by Carlos Briceño, Columns

The first time I met Jill’s father was interesting. I hadn’t met someone with Huntington’s before, but Jill had told me all about it. Huntington’s was a movement disorder, ... Read more

November 1, 2019October 29, 2019

I Want to Freeze Time to Live Forever in the Precious Moments

Always Looking Forward – a Column by Alexus Jones, Columns

Some moments are so perfect that you wish time would stop so that some part of you could live in that moment forever. These moments can be significant milestones, ... Read more

October 31, 2019October 31, 2019

MC10 and University of Vermont Establish Partnership to Study Gait Impairment in Huntington’s, other Movement Disorders

News

MC10 and the University of Vermont have teamed up to advance understanding of gait impairments in Huntington’s disease and other movement disorders. The partnership will combine MC10’s BioStamp nPoint ... Read more

October 29, 2019October 29, 2019

Inflammation and Changes in Brain’s Striatum Precede Huntington’s Symptoms, Study Finds

News

Massive inflammation and other changes in the striatum, an area of the brain selectively destroyed in Huntington’s disease (HD), are already present before patients develop any symptoms, a study ... Read more