July 18, 2019July 16, 2019
I Don’t Want to Live with a Secret Anymore
Columns, From Where I Stand - a Column by Erin Paterson
I made it down the long, sterile hallway and past the waiting room before bursting into tears. My husband ... Read more
July 18, 2019July 18, 2019
Cannabinoid Derivatives Show Therapeutic Potential in Mouse Model, But EHP-102 Still Superior
News
Emerald Health Pharmaceuticals announced that two of its cannabinoid-derived candidates — CBGA-Q and CBGA-Q-Na Salt — showed anti-inflammatory and ... Read more
July 18, 2019
European Initiative Targets Diagnosis, Treatment of Rare Diseases
News
A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the ... Read more
July 16, 2019July 15, 2019
It’s All About Respect
A Family Tradition - a Column by Carlos Briceño, Columns
Aretha Franklin sang about it. Rodney Dangerfield joked about it by saying he never got any. The Boston Red ... Read more
July 16, 2019July 16, 2019
Egypt Leads World in Huntington’s Prevalence, But Lacks Clinical Trials on the Disease, Report Says
News
Egypt, the most populous country in the Arab world, has the highest prevalence of Huntington’s disease, yet this nation ... Read more
July 11, 2019July 11, 2019
Scientists Discover Two Distinct Symptom Profiles in HD Patients
News
People with Huntington’s disease may have two different symptom profiles, a cognitive-motor and a psychiatric profile, associated with different ... Read more
July 9, 2019July 2, 2019
Reaching for the Stars to Find a Cure for Huntington’s
A Family Tradition - a Column by Carlos Briceño, Columns
Do you recall the Apollo 11 mission that took place July 16-24, 1969? My wife, Jill, likes to remind ... Read more
July 9, 2019July 9, 2019
Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients
News
The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow Macedonians with rare diseases were ... Read more
July 4, 2019July 4, 2019
World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
News
It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed ... Read more
July 2, 2019June 27, 2019
Asking for Help Isn’t Always Easy, but Sometimes It’s Necessary
A Family Tradition - a Column by Carlos Briceño, Columns
My daughter recently graduated from college. As the date approached, my wife, Jill, and I grew increasingly excited. Jill ... Read more
June 27, 2019June 27, 2019
Encouraging Brain Donations for Huntington’s Research Goal of HDSA and CHDI Foundation Partnership
News
Encouraging the families of people affected by Huntington’s disease to donate, post-mortem, their brain and other organs so as to ... Read more
June 27, 2019June 25, 2019
How the Internet Has Changed the Huntington’s Disease Experience
Columns, Gene Positive - a Column by Steven Beatty
The internet has transformed how we access information and learn new things. With the press of a button or ... Read more

July 18, 2019July 16, 2019

I Don’t Want to Live with a Secret Anymore

Columns, From Where I Stand - a Column by Erin Paterson

I made it down the long, sterile hallway and past the waiting room before bursting into tears. My husband gathered me into his arms as I stood there sobbing, ... Read more

July 18, 2019July 18, 2019

Cannabinoid Derivatives Show Therapeutic Potential in Mouse Model, But EHP-102 Still Superior

News

Emerald Health Pharmaceuticals announced that two of its cannabinoid-derived candidates — CBGA-Q and CBGA-Q-Na Salt — showed anti-inflammatory and neuroprotective effects in a mouse model of Huntington’s disease. However, ... Read more

July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

News

A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

July 16, 2019July 15, 2019

It’s All About Respect

A Family Tradition - a Column by Carlos Briceño, Columns

Aretha Franklin sang about it. Rodney Dangerfield joked about it by saying he never got any. The Boston Red Sox got it after finally winning the World Series again ... Read more

July 16, 2019July 16, 2019

Egypt Leads World in Huntington’s Prevalence, But Lacks Clinical Trials on the Disease, Report Says

News

Egypt, the most populous country in the Arab world, has the highest prevalence of Huntington’s disease, yet this nation of 100 million is overlooked when it comes to research ... Read more

July 11, 2019July 11, 2019

Scientists Discover Two Distinct Symptom Profiles in HD Patients

News

People with Huntington’s disease may have two different symptom profiles, a cognitive-motor and a psychiatric profile, associated with different clinical and neurobiological features. The findings of the study, “Specific ... Read more

July 9, 2019July 2, 2019

Reaching for the Stars to Find a Cure for Huntington’s

A Family Tradition - a Column by Carlos Briceño, Columns

Do you recall the Apollo 11 mission that took place July 16-24, 1969? My wife, Jill, likes to remind me that she remembers reading about it in a history ... Read more

July 9, 2019July 9, 2019

Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients

News

The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow Macedonians with rare diseases were so daunting, they would have scared off all but the ... Read more

July 4, 2019July 4, 2019

World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

News

It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his kidney, vision, and hearing problems as Alport syndrome. Although ... Read more

July 2, 2019June 27, 2019

Asking for Help Isn’t Always Easy, but Sometimes It’s Necessary

A Family Tradition - a Column by Carlos Briceño, Columns

My daughter recently graduated from college. As the date approached, my wife, Jill, and I grew increasingly excited. Jill became more focused on all the things that we needed ... Read more

June 27, 2019June 27, 2019

Encouraging Brain Donations for Huntington’s Research Goal of HDSA and CHDI Foundation Partnership

News

Encouraging the families of people affected by Huntington’s disease to donate, post-mortem, their brain and other organs so as to advance research into the disease and its possible treatments is the ... Read more

June 27, 2019June 25, 2019

How the Internet Has Changed the Huntington’s Disease Experience

Columns, Gene Positive - a Column by Steven Beatty

The internet has transformed how we access information and learn new things. With the press of a button or a swipe on a screen, we can be instantaneously connected ... Read more