January 17, 2020January 15, 2020

I Can Hope for a Huntington’s Cure Because I Get Vaccinated

Always Looking Forward – a Column by Alexus Jones, Columns

The Centers for Disease Control and Prevention (CDC) recommends that children get their first dose of the measles, mumps, and rubella (MMR) vaccine between 12 and 15 months. Of ... Read more

January 16, 2020January 16, 2020

Vienna to Host European Conference on Huntington’s Disease in Mid-February

News

As many as 80 experts from a dozen countries will gather next month in Vienna for the European Conference on Controversies in Huntington’s Disease (ECCH2020). The Feb. 13–14 meeting ... Read more

January 14, 2020January 10, 2020

Caregiving Is a Marathon

A Family Tradition - a Column by Carlos Briceño, Columns

My mother-in-law, Edwina, visited us right before Christmas. I’m proud to say that I’m her favorite son-in-law. (That’s a family joke. I’m her only son-in-law.) Her husband, Ken, died ... Read more

January 14, 2020January 14, 2020

Study of Brain Development in Those at Risk for Huntington’s Expands with $18M NIH Grant

News

Efforts to understand brain development in young people at risk for Huntington’s disease have been given a boost by an $18 million grant awarded by the National Institute of ... Read more

January 10, 2020January 8, 2020

Yeah, It Could be Worse, but So What?

Always Looking Forward – a Column by Alexus Jones, Columns

“It could be worse” is a sentiment I hear fairly often. It’s often said after I express sympathy for someone’s situation — such as when someone worked until 10 ... Read more

January 7, 2020January 7, 2020

Investigational Compound Induces Significant Drop in Mutant Huntingtin Protein, Ongoing Trial Data Show

News

Huntington’s patients who were treated with the compound WVE-120102 showed a statistically significant drop in mutant huntingtin protein (HTT) in their cerebrospinal fluid, according to a recent Phase 1b/2a ... Read more

January 7, 2020January 2, 2020

Cultivating Patience Requires Patience

A Family Tradition - a Column by Carlos Briceño, Columns

Patience doesn’t just happen. It takes work. Would you enter a weightlifting competition, run a marathon, or perform stand-up comedy without planning and practicing? You probably wouldn’t. So why ... Read more

January 2, 2020January 2, 2020

Selecting Right Mouse Model Key for Huntington’s Research, Therapy Development, Study Finds

News

Certain aspects of Huntington’s disease (HD), such as the biologic mechanisms of depression, are not consistently replicated in mouse models of the disorder, which may hinder therapy development, a ... Read more

December 20, 2019December 18, 2019

How Huntington’s Affects My View of Christmas

Always Looking Forward – a Column by Alexus Jones, Columns

Every family, regardless of religion or background, has at least one time of year that is special to them. A time when they get together and celebrate, repeating rituals ... Read more

December 19, 2019December 17, 2019

Having a Role Model Helped Me to Heal

Columns, From Where I Stand - a Column by Erin Paterson

I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it ... Read more

December 19, 2019December 19, 2019

Study Finds Abnormal Neural Development May Contribute to Huntington’s Disease, Offering New Therapeutic Strategy

News

Abnormal development of neural tissues may precede neurodegeneration in early-onset juvenile forms of Huntington’s disease, a recent study has found. Researchers also showed how targeting the cellular pathway involved ... Read more

December 17, 2019December 13, 2019

Simplicity Is Key to My Wife’s Happiness

A Family Tradition - a Column by Carlos Briceño, Columns

My wife is extremely low maintenance. For instance, she’s allergic to chocolate and flowers, so she doesn’t want either for Valentine’s Day. Even if she weren’t allergic, she still ... Read more