January 5, 2021December 21, 2020
Focusing on What Is Good and Beautiful This Year
A Family Tradition - a Column by Carlos Briceño, Columns
Hi, 2021. How are you? You have much to live up to. Last year, a pandemic carpet-bombed its way ... Read more
January 5, 2021January 5, 2021
‘Dancing at the Vatican’ Spotlights Families’ Struggles, Joy at Meeting Pope
News
The Huntington’s Disease Association of Ireland (HDAI) is spreading the word about a new documentary that tells the improbable ... Read more
December 22, 2020December 17, 2020
Operation Warp Speed Should Inspire a Similar Effort for Rare Diseases
A Family Tradition - a Column by Carlos Briceño, Columns
Whoever named Operation Warp Speed, the U.S. government’s project to produce and develop COVID-19 vaccines safely and effectively, got ... Read more
December 22, 2020December 22, 2020
Natural History Study of Huntington’s Fully Enrolled, Triplet Says
News
Triplet Therapeutics announced it has completed patient enrollment in SHIELD HD, a natural history study documenting the course of ... Read more
December 16, 2020December 11, 2020
Getting Involved in the Huntington’s Community Brings Great Rewards
Columns, Negative to Positives – a Column by B.J. Viau
I have only known one way to live in a family affected by a rare disease, specifically Huntington’s disease ... Read more
December 15, 2020December 15, 2020
Single CDNF Protein Injection Shown to Protect Nerve Cells, Improve Motor Skills in Rats
News
A single injection of the protein CDNF — cerebral dopamine neurotrophic factor — into the brains of rats with induced ... Read more
December 15, 2020December 10, 2020
The Turn-Negatives-Into-Positives Challenge
A Family Tradition - a Column by Carlos Briceño, Columns
Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking a thin rubber band ... Read more
December 8, 2020December 4, 2020
Time Is the Best Gift to Share With Others
A Family Tradition - a Column by Carlos Briceño, Columns
So … December is finally here. It’s the last month of the longest year ever, as far as I’m ... Read more
December 8, 2020December 8, 2020
1st Patient Dosed in Phase 2a Trial of Annexon’s Antibody Therapy for Huntington’s
News
The first participant was dosed in a Phase 2a clinical trial testing Annexon’s investigational therapy ANX005 as a treatment for Huntington’s ... Read more
December 1, 2020December 1, 2020
NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
News, syndicated
To empower and equip members of the rare disease community to engage state leaders in matters of importance to ... Read more
December 1, 2020November 24, 2020
Love Is the Mission
A Family Tradition - a Column by Carlos Briceño, Columns
I usually write about what life is like as a caregiver, along with my observations about how Huntington’s disease ... Read more
December 1, 2020December 1, 2020
Late-onset Huntington’s Has Fewer Motor Defects, Similar Cognitive Progression, Study Shows
News
Patients with early-onset Huntington’s disease (HD) experience more muscle and eye movement abnormalities, and more rapid progression of motor ... Read more

January 5, 2021December 21, 2020

Focusing on What Is Good and Beautiful This Year

A Family Tradition - a Column by Carlos Briceño, Columns

Hi, 2021. How are you? You have much to live up to. Last year, a pandemic carpet-bombed its way into our lives. As a result, it woke many people ... Read more

January 5, 2021January 5, 2021

‘Dancing at the Vatican’ Spotlights Families’ Struggles, Joy at Meeting Pope

News

The Huntington’s Disease Association of Ireland (HDAI) is spreading the word about a new documentary that tells the improbable story of Huntington’s disease (HD) families and their cross-continental journey to ... Read more

December 22, 2020December 17, 2020

Operation Warp Speed Should Inspire a Similar Effort for Rare Diseases

A Family Tradition - a Column by Carlos Briceño, Columns

Whoever named Operation Warp Speed, the U.S. government’s project to produce and develop COVID-19 vaccines safely and effectively, got it right. In doing research for this column, I came ... Read more

December 22, 2020December 22, 2020

Natural History Study of Huntington’s Fully Enrolled, Triplet Says

News

Triplet Therapeutics announced it has completed patient enrollment in SHIELD HD, a natural history study documenting the course of Huntington’s in the absence of treatment and associated disease biomarkers. With ... Read more

December 16, 2020December 11, 2020

Getting Involved in the Huntington’s Community Brings Great Rewards

Columns, Negative to Positives – a Column by B.J. Viau

I have only known one way to live in a family affected by a rare disease, specifically Huntington’s disease (HD). That way is not to sit back and wait ... Read more

December 15, 2020December 15, 2020

Single CDNF Protein Injection Shown to Protect Nerve Cells, Improve Motor Skills in Rats

News

A single injection of the protein CDNF — cerebral dopamine neurotrophic factor — into the brains of rats with induced Huntington’s disease protected affected nerve cells from degeneration and improved ... Read more

December 15, 2020December 10, 2020

The Turn-Negatives-Into-Positives Challenge

A Family Tradition - a Column by Carlos Briceño, Columns

Thick rubber bands seem unbreakable. It takes effort to pull each end. In contrast, breaking a thin rubber band takes little effort. This is how my wife, Jill, summarized ... Read more

December 8, 2020December 4, 2020

Time Is the Best Gift to Share With Others

A Family Tradition - a Column by Carlos Briceño, Columns

So … December is finally here. It’s the last month of the longest year ever, as far as I’m concerned. As I write this, it’s extremely cold and gray ... Read more

December 8, 2020December 8, 2020

1st Patient Dosed in Phase 2a Trial of Annexon’s Antibody Therapy for Huntington’s

News

The first participant was dosed in a Phase 2a clinical trial testing Annexon’s investigational therapy ANX005 as a treatment for Huntington’s disease, the company announced. The open-label study ((NCT04514367) is currently ... Read more

December 1, 2020December 1, 2020

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

News, syndicated

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the National Organization for Rare Disorders ... Read more

December 1, 2020November 24, 2020

Love Is the Mission

A Family Tradition - a Column by Carlos Briceño, Columns

I usually write about what life is like as a caregiver, along with my observations about how Huntington’s disease (HD) affects my family. I’ll do that in today’s column, ... Read more

December 1, 2020December 1, 2020

Late-onset Huntington’s Has Fewer Motor Defects, Similar Cognitive Progression, Study Shows

News

Patients with early-onset Huntington’s disease (HD) experience more muscle and eye movement abnormalities, and more rapid progression of motor symptoms, than those with late-onset disease, according to a recent ... Read more