Gene Positive — Steven Beatty

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Steven is the author of the book “In-Between Years: Life after a positive Huntington’s disease test.” He also works as a registered nurse. in Central Ontario, Canada, with his wife and two fantastic kids. In his column, he writes about the dawning days of Huntington’s symptoms.
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June 27, 2019 Columns by Steven Beatty

How the Internet Has Changed the Huntington’s Disease Experience

The internet has transformed how we access information and learn new things. With the press of a button or a swipe on a screen, we can be instantaneously connected to limitless information about whatever topic is on our mind.

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April 4, 2019 Columns by Steven Beatty

A Letter to My Grandmother

My grandmother died from Huntington’s disease (HD) complications in 1987. I was 13 years old at the time, so my memories of her are few and limited to a time in her journey when she was more advanced…

March 21, 2019 Columns by Steven Beatty

Embracing My CAG Score

Sometimes when you meet a person, there’s an immediate connection. Like kindred spirits, you become instant friends. When I attended my first Huntington Society of Canada National Conference, I met someone like that, and my mind opened to…

March 14, 2019 Columns by Steven Beatty

Welcome to ‘Gene Positive’

When I was a child, my mother would tell me that if I didn’t eat my carrots, I would go blind. I do wear glasses now, so maybe that was partially correct. But it’s more likely that she was…

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