Gene Positive — Steven Beatty

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Steven is the author of the book “In-Between Years: Life after a positive Huntington’s disease test.” He also works as a registered nurse. in Central Ontario, Canada, with his wife and two fantastic kids. In his column, he writes about the dawning days of Huntington’s symptoms.
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How the Internet Has Changed the Huntington’s Disease Experience

The internet has transformed how we access information and learn new things. With the press of a button or a swipe on a screen, we can be instantaneously connected to limitless information about whatever topic is on our mind. This effortless accessibility can have both positive and negative consequences. Online…

Columns

A Letter to My Grandmother

My grandmother died from Huntington’s disease (HD) complications in 1987. I was 13 years old at the time, so my memories of her are few and limited to a time in her journey when she was more advanced in her symptoms. I have no personal recollections of what she…

Columns

The Huntington’s Disease Headline I Can’t Wait to See

(Photo from James Pollard, Personal Collection) The above New York Times clipping, dated March 24, 1993, reports breaking news that was immensely important for the Huntington’s disease community. Even today, 26 years later, the significance of a piece of HD news has never surpassed this. Not yet anyway. The…

Columns

Embracing My CAG Score

Sometimes when you meet a person, there’s an immediate connection. Like kindred spirits, you become instant friends. When I attended my first Huntington Society of Canada National Conference, I met someone like that, and my mind opened to a new way of thinking. At the time, I was still…

Columns

Welcome to ‘Gene Positive’

When I was a child, my mother would tell me that if I didn’t eat my carrots, I would go blind. I do wear glasses now, so maybe that was partially correct. But it’s more likely that she was either misinformed or just trying to get me to eat my…

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