Huntington’s disease support groups and resources
Support groups and community resources for Huntington’s disease can offer meaningful connection, emotional support, and reliable information for people living with HD and their caregivers.
From diagnosis to daily life:
Navigating Huntington's disease
Facing Huntington’s disease can feel overwhelming, but understanding your care options is an important starting point. Whether it’s managing symptoms or incorporating adaptive tools, you can take meaningful actions to navigate your path in a way that feels right for you.
Watch: Bracing for the long haul
Read: From diagnosis to daily life
Huntington’s disease and sleep
Huntington’s disease disrupts sleep, worsening cognitive decline and emotional distress. Managing sleep with consistent routines, relaxation techniques, and medical support can improve rest, daily functioning, and overall well-being.
Benefits of an early Huntington’s diagnosis
An early Huntington’s diagnosis helps patients access symptom management resources, improve their overall quality of life, and make informed plans for the future. Advancements in genetic testing have made early detection more accurate.
Managing Huntington’s symptoms: Insights into disease progression
As Huntington’s disease advances, symptoms related to movement, cognition, and behavior become increasingly pronounced. Greater awareness of each stage supports more effective care planning.
Essential adaptive devices and technologies for Huntington’s
Adaptive devices can help make daily life with Huntington’s disease more manageable by enhancing mobility, improving communication, and simplifying everyday tasks, thereby promoting safety, comfort, and greater independence.
Genetic testing for Huntington’s disease
Genetic testing for Huntington’s identifies HTT gene mutations, aiding in diagnosis and family planning. Genetic counselors can guide you through the process and its emotional impacts.
Chorea and Huntington’s: Understanding the connection
Chorea, involving involuntary muscle movements, is linked to Huntington’s disease but can occur in other conditions too. Understanding their connection can help manage symptoms.
Huntington’s disease diet: Foods to eat and avoid
A Huntington’s diet focused on nutrient-dense, high-calorie foods and supportive meal strategies can help maintain weight and ease mealtime challenges caused by swallowing difficulties.