Valentine’s Day, a holiday my wife doesn’t believe in, has come and gone. Jill sees the day as a manufactured holiday. She believes that every day should be like Valentine’s Day — in other words, you should show love every day to the ones you love. We don’t make grand…
Columns
As most of you know, my wife and daughter tested positive for Huntington’s disease. They have witnessed the brutality that Huntington’s can inflict, and they have every right to curl up in bed every day and cry. But they don’t. They get up and continue forward with what I…
This week, I read two articles that were sent to me describing scientific breakthroughs regarding possible treatments for Huntington’s. The first described a case study recently published in the journal Psychiatry and Clinical Neurosciences. It…
I’m not a nurse or a social worker. In other words, I haven’t received formal training in caregiving from a college or a university. But I do feel that I’m prepared to do well as a caregiver because of the training I received as a child. I grew up in…
What Family Means to Me
Growing up, my grandparents and I drove every summer from Florida to Pennsylvania to visit our extended family. I spent time with their siblings, nieces, and nephews who still lived in the state. I adored my family, and in turn, they adored me. At the time, family was…
Facing the Pain of Dying Younger
I saw a pig fly the other day. OK, that’s a lie. But it sure felt like one did because my wife, Jill, cried. It’s rare for her to cry. Crying makes her feel worse than whatever made her cry in the first place, so she tries to avoid it.
Last weekend, my boyfriend and I finally exchanged our Christmas presents. This exchange consisted of us renting a car and driving over nine hours through a winter storm to get to an Airbnb outside of Toronto.
During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream…
In this week’s column, I’d like to share a few details about a typical day for my wife, Jill. When the alarm sounds at 5:20 a.m., she wakes up and gets ready to go to work as a secretary in a small private school. Jill starts her workday by helping…
The Centers for Disease Control and Prevention (CDC) recommends that children get their first dose of the measles, mumps, and rubella (MMR) vaccine between 12 and 15 months. Of course, some children can’t receive it due to immune system problems or severe allergies,…
Recent Posts
- Your voice matters to the Huntington’s disease community
- Tiny systems that keep my life moving with Huntington’s disease
- UK company selects HRN001 as its lead Huntington’s therapy candidate
- Giving thanks for the brave volunteers who participate in HD clinical trials
- The challenges of navigating dating while living with Huntington’s disease