Negative to Positives – a Column by B.J. Viau

B.J. has played a role in the Huntington’s disease (HD) community since his mom’s diagnosis in 1995. He and his family hosts an annual Hoop-A-Thon fundraiser that’s helped to raise over $1 million for the HD Society of America. BJ co-founded the HD Youth Organization, an international non-profit helping young people impacted by HD. He’s served as its board chairman for over 10 years. Professionally BJ has been working in the pharmaceutical industry for the past 10 years in various positions. He tested negative for HD, but remains committed to supporting the community and hopes this column will bring positive energy into many people’s lives.

FDA Patient Listening Session Set for Huntington’s Disease

When I stepped away from my role as board chair of the Huntington’s Disease Youth Organization in 2020, I knew it wouldn’t be long before I found my next Huntington’s passion project. The passion in me is deeply rooted and originally created through my mom, who passed from Huntington’s…

The Importance of a Spinal Tap in HD Research

I traveled last month to the University of Wisconsin-Madison to participate in an observational research study called PREVENT-HD. I’ve written about the importance of participating in trials, and the purpose of the PREVENT-HD study is to develop tools to find and track subtle, but measurable, changes in behavioral,…