A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box

Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

How Support From Extended Family Benefits HD Caregivers

Last November, our daughter, Alexus, who is gene-positive for Huntington’s disease (HD), got married to a wonderful man named René. The civil ceremony took place in a restaurant in Boston. It was short, sweet, and relatively uncomplicated — exactly what the newlyweds wanted. They also wanted a…