A Family Tradition - a Column by Carlos Briceño

vote, white coat syndrome, protective, show, details, unexpected, party on, choose, outside the box Carlos is a journalist in the Midwest, who through the grace of God has been blessed with a brilliant, beautiful, and courageous wife and daughter. His wife found out she was gene-positive for Huntington’s Disease (HD) at the age of 41, while his daughter found out she was gene-positive for HD when she was 22. Carlos’s aim in writing column is to offer a caregiver’s perspective while also trying to inspire those families who are dealing with Huntington’s. He loves to evangelize, read, play soccer, and share — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Caregiving Is a Marathon

My mother-in-law, Edwina, visited us right before Christmas. I’m proud to say that I’m her favorite son-in-law. (That’s a family joke. I’m her only son-in-law.) Her husband, Ken, died from Huntington’s disease in 2011. During her visit, I asked her what it’s like to be a caregiver for someone you…

Cultivating Patience Requires Patience

Patience doesn’t just happen. It takes work. Would you enter a weightlifting competition, run a marathon, or perform stand-up comedy without planning and practicing? You probably wouldn’t. So why do we expect ourselves just to be patient? When my wife, Jill, learned that she carries the Huntington’s gene, we started…

Simplicity Is Key to My Wife’s Happiness

My wife is extremely low maintenance. For instance, she’s allergic to chocolate and flowers, so she doesn’t want either for Valentine’s Day. Even if she weren’t allergic, she still wouldn’t want them because she believes Valentine’s Day is a manufactured holiday. So we essentially don’t acknowledge it. (However,…

It’s Important to Give Thanks Daily

Thanksgiving always seems to occur out of the blue, and this year was no different. One minute it’s summer and the weather is warm. You blink, and the leaves are changing. Blink again, and daylight savings time ends. And then you wake up, and it’s Thanksgiving. My family differs from…

Time Is More than Money

This week’s column was going to be about patience, but before I could write it I received a text from my wife, Jill. She asked if I had used our credit card at a place where I don’t normally shop. The answer was a resounding no. My wife handles…

Focus on the Good in Every Moment

So which is worse: a long, drawn-out illness or a sudden, unexpected death? As the caregiver of a loved one with Huntington’s disease, I’m dealing with someone who is going to be suffering for a number of years. What my wife, Jill, will endure will not be a walk…

United in Grief, We Are Huntington’s Strong

Author’s note: This column is for anyone with Huntington’s disease or their family and friends. Dear Huntington’s community: Many of us don’t know each other, but we are bound by our suffering, heartache, pain, sorrow, and grief. And also by our hope, love, and mercy. We are linked together by…

Why Blend In When You Were Born to Stand Out?

The first time I met Jill’s father was interesting. I hadn’t met someone with Huntington’s before, but Jill had told me all about it. Huntington’s was a movement disorder, and she had a 50 percent chance of inheriting it. I researched Huntington’s before meeting Jill’s father, but seeing the…