Bracing for the long haul: Huntington's progression readiness

Cultivating a healing environment with Huntington’s

Tanita Allen shares her journey toward realizing self-acceptance and the power of support.

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About the series

While each person’s Huntington’s disease progression is unique, listening to community advice can go a long way in preparing patients and caregivers to navigate the road ahead with greater assurance.

In this series, three individuals with Huntington’s disease share practical advice about how to prepare for disease progression, including preparing finances, adapting spaces, and approaching tough conversations about advanced directives.

Stay tuned as our community continues to share strategies and support through this ongoing series of videos.

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Cultivating a healing environment with Huntington’s

Tanita Allen shares her journey toward realizing self-acceptance and the power of support.

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Preparing for Huntington’s while living fully

Seth Rotberg shares how he copes with an uncertain future and leans on community.

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Planning ahead for Huntington’s care needs

Kerry Eldred shares how she’s taking steps to protect her future and ease the burden on her loved ones.

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Overcoming hesitation to ask for help with Huntington’s

Seth Rotberg holds a master’s in nonprofit management and is based in Chicago, Illinois. He tested positive for Huntington’s disease in 2011. He reveals how accepting support can make all the difference.

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Kerry Eldred

Confronting an uncertain future with Huntington’s disease

Kerry Eldred, who lives in Jacksonville, Florida, tested positive for Huntington’s disease in 2009. She shares what she wishes loved ones knew about her reality, calling it a “ticking time bomb.”

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Preparing for Huntington’s disease care transition decisions

Tanita Allen, who lives in Cleveland, Ohio, was diagnosed with Huntington’s disease in 2012. Her approach to future care makes tough transitions easier for loved ones.

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Seth Rotberg

Approaching tough talks about Huntington’s progression

Seth Rotberg holds a master’s in nonprofit management and is based in Chicago, Illinois. He tested positive for Huntington’s disease in 2011. He explores simple ways to ease difficult caregiving conversations.

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