Carlos Briceño,  —

Carlos Briceño is a journalist and director of communications who, through the grace of God, has been blessed with a brilliant, beautiful, and courageous wife and daughter. He currently lives in Maryland, about a half hour away from Washington, D.C., with his wife, Jill. In 2018, Jill found out she was gene-positive for Huntington’s disease at the age of 41, while his daughter found out she was gene-positive for HD in 2019 when she was 22. Jill and Carlos write about their day-to-day struggles and triumphs to share their knowledge and to let others know they are not alone. Carlos loves to evangelize, read, play soccer, and pepper his conversations with — according to family members —really bad puns. (For the record, Carlos thinks his puns are really punny and funderful.)

Articles by Carlos Briceño

Are You an Open or Closed Book?

I am a writer, and as such, I like to think of people as books. Either you are an open book or a closed one. Let me explain. My wife, Jill, and I have so many things in common that sometimes I forget that we don’t have a few things…

Do You Listen or Wait Your Turn to Talk?

While talking about family illnesses with friends recently, I sat back and watched people discussing cancer, dementia, and myriad other life-altering conditions. Everyone had a story to tell about taking care of someone with an illness or experiencing it themselves. I noticed that, after each person shared, the group moved…

My Daughter’s Diagnosis Won’t Defeat Her

Here’s the scene: My wife, Jill, and I are at Jill’s work. We’re on speakerphone with our daughter’s friend, who is at a hospital almost 1,000 miles away with three other friends and Lou, our daughter. (Lou is our daughter’s nickname.) The reason for the call is to listen in…

The Monsters Under the Bed

“The Talk” has a very different meaning to most people than it does in our home. When our daughter was born, my wife, Jill, had a very clear wish that we would always be open and honest with our daughter about things. By “things,” Jill meant most everything. She wanted…

Our Family’s Bad Dream Won’t Go Away

Family traditions often include fond memories. For instance, President John F. Kennedy’s family tradition involved sailing a 25-foot sailboat called the Victura. The open sea, the wind at your back, the blue skies, the sun sparkling off the water — who wouldn’t look back at those memories and not smile…