For years, my wife, Jill, had asked me to watch a TV show she thought I’d love. I spent all of that time saying no, but this year, I finally broke down and watched “The Sopranos.” As it played, I found myself reflecting on something profound: Grieving doesn’t get…
My wife, Jill, and I often find ourselves in airports with free time while visiting family across the country. To escape the chaos in waiting areas, we often watch TV shows on my iPad. Recently, we finished HBO’s “Succession,” a drama about a global media…
As someone whose wife and daughter are gene-positive for Huntington’s disease (HD), I’m always interested in any new studies and advancements in treatment. So when a friend recently called to let me know that the Huntington’s Disease Society of America (HDSA) is hosting a meeting in November…
Halloween is coming next month. It’s my wife Jill’s favorite holiday, mainly because she likes scary experiences. Her excitement is like a child’s when she enters a haunted house or steps onto a roller coaster. There’s something about the rush — that heart-pounding excitement — that makes her fearless…
My wife, Jill, sometimes daydreams about items we could sell on Etsy, an online store for handmade or vintage products. One idea is a T-shirt that says: “I’m not drunk. I have Huntington’s disease.” Jill is gene-positive for the disease, as was her father and multiple people…
My wife, Jill, has always been the embodiment of resilience. She’s the type of person who can power through even the most daunting circumstances. I loved this quality when we met because it was a testament to her strength of character. She especially relies on her toughness as she…
My wife, Jill, loves the thrill of roller coasters. The higher, faster, and twistier the ride, the better. Most people scream, but Jill never feels calmer than when she’s on a coaster. She’s one of those rare people who can focus better and handle stress more effectively when an…
My wife, Jill, has always been a force of nature when it comes to home projects. From assembling furniture to organizing or fixing appliances, Jill has been unstoppable. I’ve lost count of the times I’ve gone to bed with an unopened box in the living room, only to…
Who will become the next president? I’m actually talking about the next president of the Huntington’s Disease Society of America (HDSA), the largest public nonprofit organization dedicated to improving the lives of people affected by Huntington’s disease (HD) through research, education, and advocacy. Louise Vetter served…
I sat across from my wife, Jill, watching her organize her nail polish. When she paused, I could see the weight of her body language: She was slumped forward, which is unusual for her, as she usually projects positivity in everything she says and does. She was…
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