Erin Paterson holds copies of her books. (Photo courtesy of Erin Paterson) This is Erin Paterson’s story: I attended a conference for families impacted by Huntington’s disease (HD) — a spectacular event with expert panels and motivational speeches. But it’s the hugs and the feeling of being loved…
Stu Hopper, left, and Carlos Contreas take a photo in Tenerife, one of the Canary Islands, on a cruise stop by the Royal Caribbean’s Explorer of the Seas. (Photos courtesy of Stu Hopper) This is Stu Hopper’s story: Carlos Contreas and I, Stu Hopper, met…
Kerry Agee smiles with her husband, Cody Agee. (Photos courtesy of Kerry Agee) This is Kerry Agee’s story: Hello! It’s a pleasure to meet you. I’m Kerry, 44, wife of a Gen-Xer, mother to a teen, and lover of dance, travel, “Lord of the Rings,” and Hello Kitty, as…
Porcia White and her husband, Jamie, found out together the results of her genetic testing for Huntington’s disease. (Photos courtesy of Porcia White) This is Porcia White’s story: Huntington’s disease was a part of my life from an early age. My earliest memory was sitting against the wall…
Chrissi and Tommy Penney have been together since 2010. (Photos courtesy of Chrissi Penney) This is Chrissi Penney’s story: I’d like to share my family’s story with Huntington’s disease (HD). It’s not easy to watch your family deteriorate and your children become caregivers. My grammy (my dad’s mom)…
From left, Roman, Todd, Brandy, and Meara Niemiller pose for a photo. (Photos courtesy of Brandy Niemiller) This is Brandy Niemiller’s story: On Valentine’s Day in 2001, I was an 18-year-old high school graduate who was unsure about where I was headed in life. That day, my long-time friend…
Tanita Allen advocates for those harmed by neurological diseases, systemic injustice, and healthcare disparities. (Photos courtesy of Tanita Allen) This is Tanita Allen’s story: Life has taken me on a journey filled with unexpected twists, especially as I face the challenges of Huntington’s disease (HD). Sharing my story…
David McDonagh smiles in a photo. (Photos courtesy of David McDonagh) This is David McDonagh’s story: I don’t have “the gene,” but I’m still living with HD. Let me explain and I hope that you’ll see. I tested negative … and that’s just how I feel,…
Since her sister-in-law’s diagnosis, Kemi Olafare has been advocating for the Huntington’s disease community. (Photos courtesy of Kemi Olafare) This is Kemi Olafare’s story: On reflecting on Huntington’s disease (HD) and its impact on my world, I can categorize my journey into three stages. 1. Awareness is…
Phil and Sarah Morris live in Perth, Western Australia. (Photos courtesy of Sarah Morris) This is Sarah Morris’ story: Once you know, it just takes over. For years it was the first and last thing on my mind every day. It was always in my head, always a worry.
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