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Recent Posts

• We Need Realistic Timelines for Huntington’s Treatments
• ‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases
• Glia Brain Cells May Open Door to Treatment Strategy
• My Wife’s Family Is Huntington’s Strong
• Register Now for Global Genes’ RARE Patient Advocacy Summit
• Hearing on Huntington’s Appreciated, But Parity Act Is Priority
• Waving Goodbye to Toxic Relationships
• NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration
• VO659 Earns Orphan Drug Designation
• Writing the Soundtrack to My Life With My Gene-positive Wife